About EGFR Positive Lung Cancer UK

EGFR Positive Lung Cancer UK began in 2019, when co-founders Jenny Abbott and Kathy Beattie - both diagnosed with EGFR-positive lung cancer - found there was little support available in the UK. What started as a small Facebook group has grown into a national charity supporting over 1,000 members, and a trusted voice for patients, families, clinicians, researchers and policymakers.

We became a registered charity in 2020, and since then have worked in advocacy, education and policy - from treatment appraisals with NICE and the Scottish Medicines Consortium, to campaigns like See Through the Symptoms and All You Need is Lungs, to speaking in Parliament on drug access and cancer care.

At our heart remains the mission Jenny and Kathy set out with: to make sure no one faces EGFR-positive lung cancer feeling isolated or unheard.

Why did EGFR Positive Lung Cancer UK commission Our Lungs: Time to Breathe?

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Chair, EGFR Positive Lung Cancer UK

Nicola Cowland

EGFR Positive UK is passionate about raising awareness of lung cancer, particularly among younger people and those who have never smoked. 1 in 5 people diagnosed with lung cancer have never smoked. Yet the misconception that lung cancer is a disease of older smokers can mean symptoms are overlooked and diagnosis is delayed. We hope this film will help these messages reach a wider audience, encourage greater awareness of the symptoms, and ultimately contribute to earlier diagnosis and better outcomes.

We are so grateful to the Wysocki family for sponsoring this film through their fantastic fundraising efforts in memory of their son Alex. And also want to extend our gratitude to Sarah Li, our filmmaker, who is also diagnosed with EGFR positive lung cancer. Allowing us to share more of her story, and to learn more about Alex, has allowed us to make a very powerful documentary.

We hope that after viewing this documentary, you will want to share its messages and help us ensure that the stories of both Alex and Sarah, alongside the thousands of people affected by non-smoking lung cancer each year, help us to raise awareness, challenge perceptions and create positive change - so that more people understand that lung cancer can affect anyone.

Have a question about the film, want to get involved, or just want to say hello? We'd love to hear from you.

Fill in the form and we'll get back to you as soon as we can.

Get in touch

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A woman with curly hair and a beige sweater looking at her phone, sitting on a bed, with two large screens behind her showing women talking about health issues, one with text mentioning cancer.

Our Lungs: Time to Breathe is part of a wider campaign using the power of film to challenge misconceptions around lung cancer. It raises awareness that it can affect anyone, including young, active people with no smoking history and encourages earlier diagnosis. Because when lung cancer is caught sooner, people have more treatment options, and time.

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