Privacy Policy
1. Who is responsible for your personal information?
This website is run by EGFR Positive Lung Cancer UK (Charity No. 1189722), Tower Cottage, Steep Marsh, Petersfield GU32 2BP, as part of the campaign for the documentary Our Lungs: Time to Breathe.
EGFR Positive Lung Cancer UK is the data controller for all personal information collected and used in connection with the site and the film campaign. This includes:
general enquiries;
screening requests;
mailing-list subscriptions;
campaign communications;
information required for the secure and effective operation of the website; and
personal information contained in the documentary and its associated production materials, including footage, still photographs, interviews and contributor records, which belong to EGFR Positive Lung Cancer UK.
Sarah Li, the film's director, worked on the production of the documentary and is credited accordingly, including by Fazed Pictures, her production company. Fazed Pictures does not own or control the film, its assets, or any personal information connected with it. Sarah Li does not independently control any personal information in connection with this microsite or the documentary.
EGFR Positive Lung Cancer UK contact: contact@egfrpositive.org.uk
2. Information we collect
EGFR Positive Lung Cancer UK may collect your name, email address and any other information you choose to provide when you:
submit a general enquiry;
request a screening of the documentary; or
subscribe to campaign updates.
For screening requests, this may include:
your name;
email address;
telephone number, where provided;
organisation or group;
proposed screening date and location;
expected audience;
purpose or nature of the screening;
accessibility or other screening requirements; and
any other information you choose to provide in connection with your request.
Please avoid providing sensitive personal information unless it is necessary for us to deal with your request.
Limited technical information may also be collected when you visit the microsite, such as device or browser information, pages viewed, approximate geographic region and information about how the site is used.
Non-essential analytics technologies will only be used in accordance with the website's cookie consent arrangements.
3. How we use your information and our lawful bases
General enquiries
EGFR Positive Lung Cancer UK uses information you provide to respond to and manage your enquiry.
The lawful basis is ordinarily legitimate interests, namely the charity's legitimate interests in communicating with people who contact it and administering the film campaign.
Screening requests
EGFR Positive Lung Cancer UK uses screening-request information to:
assess your screening request;
communicate with you about the proposed screening;
determine whether and on what basis a screening can proceed;
make practical arrangements for an agreed screening;
provide relevant screening information or materials;
respond to questions relating to the screening;
maintain appropriate administrative and financial records; and
evaluate and report on the reach and impact of the film campaign.
Depending on the circumstances, our lawful basis will ordinarily be:
legitimate interests, namely EGFR Positive Lung Cancer UK's legitimate interests in promoting the documentary, facilitating appropriate screenings and administering the film campaign; and/or
steps at your request before entering into a contract, where screening arrangements involve an agreement between you or your organisation and EGFR Positive Lung Cancer UK.
Where we are required to process information to comply with a legal obligation, we will rely on the applicable legal-obligation basis.
Mailing list and campaign updates
If you subscribe to EGFR Positive Lung Cancer UK's campaign updates, the charity uses your name and email address to send campaign news and updates.
The lawful basis is consent. You can withdraw your consent at any time by using the unsubscribe facility in an email or by contacting the charity.
Website operation and security
EGFR Positive Lung Cancer UK may process limited technical information where necessary for the secure and effective operation of the microsite.
The lawful basis is legitimate interests, namely our legitimate interests in maintaining a secure, reliable and effective website.
4. Who we share your information with and our service providers
EGFR Positive Lung Cancer UK will only share personal information where this is necessary and appropriate.
Sarah Li
Information relating to a screening request may be shared with Sarah Li, the film's director, where this is reasonably necessary to support or arrange a screening of the documentary. Sarah Li processes this information on behalf of EGFR Positive Lung Cancer UK and does not independently determine how it is used.
Other service providers
This site may use third-party providers to host and operate the website, provide analytics and manage mailing-list communications. These providers process personal information in accordance with their contractual arrangements and applicable data-protection requirements.
Google Analytics 4 - Google Ireland Limited
Where enabled following the required cookie consent, Google Analytics 4 may be used to understand how visitors use the microsite and to produce website-usage statistics. Information processed may include usage data, session information, device/browser information and online identifiers.
Mailchimp - Intuit
Mailchimp is used to manage campaign mailing-list subscriptions and communications.
Personal information processed may include:
email address;
first name; and
last name.
Mailchimp may process personal information in the United States. Where UK personal information is transferred internationally, appropriate UK-recognised transfer arrangements will be used.
Squarespace
Squarespace is a platform provided by Squarespace, Inc. that may be used to build, operate or host this website. Personal information processed may include device information, email address, name, geographic region, website interactions, online identifiers, trackers and usage information.
GoDaddy
GoDaddy Web Hosting, provided by GoDaddy.com, LLC, may provide hosting or related services. Personal information processed may include information communicated while using the service, device information, usage information and online identifiers.
5. International transfers
Some organisations providing services to EGFR Positive Lung Cancer UK may process personal information outside the United Kingdom.
Where a transfer of personal information is subject to UK data-protection restrictions, EGFR Positive Lung Cancer UK will ensure that an appropriate transfer mechanism or safeguard is used.
Depending on the circumstances, this may include:
a UK adequacy regulation;
the UK Extension to the EU-U.S. Data Privacy Framework, where applicable;
the UK International Data Transfer Agreement;
the UK Addendum to the EU Standard Contractual Clauses; or
another transfer mechanism permitted by UK data-protection law.
Some providers, including Mailchimp, Squarespace and GoDaddy, may process information in the United States. EGFR Positive Lung Cancer UK will ensure that appropriate safeguards are in place where they are required.
6. How long we keep your information
EGFR Positive Lung Cancer UK keeps personal information only for as long as it is reasonably necessary for the purpose for which it was collected and in accordance with the charity's retention arrangements.
General enquiries
General enquiry information will normally be retained for 12 months after the enquiry has been resolved, unless there is a reason to retain it for longer.
Screening requests
Information relating to screening requests will normally be retained for as long as reasonably necessary to:
assess the request;
make and administer screening arrangements;
deal with any follow-up matters;
maintain appropriate financial or contractual records; and
demonstrate and evaluate the reach and impact of the film campaign.
Where a screening does not proceed, information that is no longer required will normally be deleted or securely disposed of in accordance with EGFR Positive Lung Cancer UK's retention arrangements.
Where a screening does proceed, some information may need to be retained for longer where this is required for legal, contractual, accounting, reporting or legitimate record-keeping purposes.
EGFR Positive Lung Cancer UK will periodically review screening information and will not retain identifiable personal information for longer than is reasonably necessary.
Mailing-list information
Mailing-list information is retained while you remain subscribed. Limited suppression information may be retained after you unsubscribe so that your preference not to receive further marketing communications can be respected.
Analytics information
Analytics information is retained in accordance with the retention settings applied to the relevant analytics service.
7. Your data-protection rights
Depending on the circumstances and the lawful basis for processing, you may have rights including the right to:
request access to your personal information;
request correction of inaccurate or incomplete information;
request erasure of your information;
request restriction of processing;
object to processing;
request data portability where applicable; and
withdraw consent where processing is based on consent.
For personal information relating to the microsite, general enquiries, screening requests, mailing-list subscriptions, the documentary or EGFR Positive Lung Cancer UK's administration of the film campaign, please contact:
You also have the right to complain to the Information Commissioner's Office (ICO) if you are concerned about the way your personal information has been handled.
8. Cookies and analytics
Necessary cookies and similar technologies may be used without consent where they are required for the microsite to function or to provide a service you have requested.
Non-essential cookies and similar technologies, including analytics cookies where consent is required, will not be set or accessed unless you have given the required consent.
You can use the website's cookie settings to make or change your choices. Further information about the cookies and similar technologies used should be provided through the website's cookie notice or cookie settings.
9. Information about people appearing in the film
This privacy notice primarily explains the processing of personal information connected with use of the website, screening requests and EGFR Positive Lung Cancer UK's film campaign activities.
The documentary itself contains personal information relating to identifiable individuals and may include images, voices, interviews and information about personal experiences and health. This information belongs to and is controlled by EGFR Positive Lung Cancer UK, in accordance with the release forms and consents obtained during production.
This privacy notice does not replace any separate privacy information, permissions, consents, contributor releases or safeguarding arrangements relating to individuals who appear in the documentary, photographs, clips or other production materials.
Where a child or young person under the age of 18 appears in the documentary, appropriate permissions, privacy information and safeguarding arrangements should be maintained, taking account of the child's or young person's age, understanding and evolving capacity.
10. Changes to this privacy notice
We may update this privacy notice from time to time to reflect changes to the website, screening arrangements, service providers, the film campaign or applicable data-protection requirements.
The latest version will be made available on this website.
Last updated: 7 September 2026